Day 223:all about My Experiences

Well... I know I haven't posted in FOREVER and some people have called me out on it, so I will try and catch up on everything!!! I don't even know where to start... A LOT has happened since my last post. Lets start with medical stuff I guess... I am healing very well and my incisions are doing very good! Of course I HATE the box and the scars that have came along with it, but it is what it is and it will save my life one day.                                    
I don't know if I have mentioned this or not but we did genetic testing  to find the mutated gene, so we can see for sure where I got it, if anyone else has it, or if im just the odd ball in the family that got it first. Today we heard back from Dr. Tate and they have found the gene. The gene that is mutated is the KCNH2 (that probably means NOTHING to most people reading this) but you can look it up and it will tell you A LOT about Long QT. When all of this first happened I was having a lot of anxiety about going out in public anywhere. My mind would start playing games with me and I thought I was going to go down, I would get sick a lot, and would hardly get out of the house because of these terrible feelings. Now I am doing a lot better and have almost no anxiety, and if I do it is for a short period of time and I have learned to just accept it. Its funny because my fear isn't even of me going down again, my fear is that I am going to scare the people around me. Kristi, Nicolle, and Courtney (sisters and brother) all wore a 30 heart monitor to see if they had any problems, and they all came back normal BUT this does not give a 100% accuracy because Long QT is hidden and will only come out sometimes (except in my case, where every test we have done we have seen it) hopefully their genetic testing will all come back normal! *fingers crossed*.
A couple of weeks ago I was facetiming Brody (we will get to him later), and decided I needed to get into the shower. Well after I hung up I noticed that I couldnt feel my hand at all, but I thought I had just laid on it wrong or something. After the feeling went all the way up to my elbow I finally decided to go tell my mom that something was wrong. Soon the feeling had covered the whole right side of my body, mouth, and I wasnt able to speak very well. The feeling started going away and I felt EXHAUSTED, so I went to bed. The next morning we called Dr. Tate, and he said to go into the ER right away. We think I had a mini stroke... I am 19 and I am having all these old people problems!! WHAT IS WRONG WITH ME?!?!
If anyone doesnt know I am taking online classes, and its HARD. The work isnt hard but I have NO motivation to do any of it haha but I do anyways and its going pretty good! I am planning to go back to Florida mid April and move out of my house. No I do not know what im going to do next year... and yes I do stress about it everyday!!
Like I said I have been healing very well and had started to get back into volleyball. Although there are things that im not physically able to do yet I have been progressing very well. Well thats about it for medical stuff.. Now onto happy stuff.

Yes there is a different boy. Patrick and I said cya for the last time, and then I found Brody! He claims that he tried to hang out with me in high school, but I had a boyfriend so I didnt give him the time of day (I dont remember it). Well when he found out that I had surgery he messaged me on facebook telling me he was sorry, and he asked how I was doing. I dont really remember writing him, but the messages are there so it must of happened haha. After he kept me company for a couple days while I was healing I decided it was time that we finally hung out. He was coming into St. George for the weekend and we were supposed to go to dinner and a movie. This would have been the first time I have been out of the house for a long time since the accident... I chickened out and he came over and just hung out with the family and I. We hung out everyday that weekend and havent missed a weekend since. He went to Dixie high school and now goes to college in Colorado where he is on a rodeo scholarship, so I only see him on weekends. Everything clicked so fast and we made it official within a little over a week, and I have never wanted it any different. He has seriously changed my life for the better and has been a real blessing that came into my life at the perfect time. We do a lot of fun things together and I will post pictures of it so everyone can be jealous of my perfect relationship ahah. We recently went to Mt. Pleasent for a rodeo and will go to CSI this weekend and then go to SPRING TRAINING together!! Im so excited!! He seriously kills me!! He makes my day EVERY day, makes me laugh ALL THE TIME, and I love him even though he is a dork most of the time haah!